The Genome Action Coalition
The Genome Action Coalition (TGAC) was created in January of
1995. It began with less than a dozen members from various fields
who were united in the common belief that the success of the Human
Genome Project is critically important for the future of biomedical
research and for health care.
Today, the Coalition is comprised of more than 130 members.
They span a diverse range, including patient advocacy associations
and foundations, professional groups in the field of genetics,
pharmaceutical research and biotechnology companies, university-based
research entities, and others.
TGAC has been active in a variety of issues. Members have testified
before Congress concerning the level of appropriations for the
National Institutes of Health and on other issues; it has been
involved in such legislative issues as genetic nondiscrimination
in health insurance, genetic nondiscrimination in employment,
medical record privacy and others. In addition, it has conducted
numerous, substantive briefings on Capitol Hill and elsewhere,
and each year sponsors the James D. Watson Lecture and Award Ceremony.
The Coalition is governed by a representative Steering
Committee. Dr. Kay Redfield Jamison, a Professor of Psychiatry
at The Johns Hopkins Medical School and the President of the Manic
Depressive Illness Foundation, is the Chair.
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